Team Grant : E-Rare-5 Joint Transnational Call

CIHR-IG is pleased to be partnering with approximately 18 international funding organizations in the context of this European Joint Programme on Rare Diseases (EJP RD) call for proposals 2021. CIHR-IG is committed to expanding and improving the diagnosis and treatment of rare diseases by creating the conditions needed to bring together creative, dynamic, interdisciplinary teams of researchers from across Canada and the European Community (EC) to collaborate for better health outcome for the rare disease patient community.

The topic of the call is Social Sciences and Humanities Research to improve health care implementation and everyday life of people living with a rare disease.

Projects shall involve a group of rare diseases or a single rare disease following the European definition i.e. a disease affecting not more than five in 10,000 persons in the European Community, EC associated states and Canada. Applicants are encouraged to assemble groups of rare diseases based on solid criteria and commonalities if this leverages added value in sharing resources or expertise or has the capacity to elucidate common disease problematics.

For more information, please consult EJP RD JTC2021.

Research Areas

This funding opportunity will support transnational research proposals relevant to at least one of the following areas:

1. Health and social care services research to improve patient and familial/household health outcomes
2. Economic impact of rare diseases
3. Psychological and social impact of rare diseases
4. Studies addressing the impact/burden of the delay in diagnosis and of the lack of therapeutic intervention
5. e-Health in rare diseases: Use of innovative technology systems for care practices in health and social services
6. Development and enhancement of health outcomes research methods in rare diseases
7. Effects of pandemic crisis and the global outbreak alert and response on the rare disease field, and the emergence of innovative care pathways in this regard

Additional details on subtopics for each above mentioned area in Annex 1 of the European Joint Programme on Rare Diseases (EJP RD) call for proposals 2021.